Autism Is a World (TV Movie 2004) Poster

(2004 TV Movie)

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8/10
Autism is a World Movie Review
rfalisi14 May 2021
Warning: Spoilers
Sue Rubin is living her worst nightmare, as expressed in her film Autism is a World through her dependence on others and being viewed as different in society. She has autism and is unable to communicate by herself, as she has to rely on the assistance of her various helpers and her facilitated communication devices. Rubin is aware that she is different from others around her, as she deals with extreme outbursts and uncontrollable movements. When Rubin was very young, she was self-abusive, in which she would bite herself and slam her head against the wall due to her noticed differences from her peers and family members. Rubin considered herself to be a "non-person" when she was unable to communicate at all, but says that she was always treated well by her family members, peers, and school. She is grateful for all of the help, love, and support that she has received but continues to struggle with her independence.

Rubin is an intelligent and brilliant woman. Even though she could not express her own thoughts until the age of 13, she was aware that she was unable to communicate like her peers and family members. This is why her true intelligence was shown when the facilitated communication devices were provided, as Rubin was now able to express the thoughts in her brilliant mind. However, some people question the validity of facilitated communication since it is believed that the "intelligence" being measured is the intelligence of the aide and not the autistic individual. Rubin's speech at the Syracuse University's Conference of Educators and People with Autism was very interesting, as one of her helpers read the speech Rubin had prepared with her facilitated communication device. In this speech, Rubin expresses how her purpose for this speech and her life's work is to "enlighten individuals to the potential of their own voices." This is very much applicable to individuals with and without autism. This means that everyone has his or her own voice and should use it for communication and to help others.

Autism is a World relates to the film Deej, as both grapple with contrasting concepts of independence and dependence. When DJ Savarese was very young, he was lucky to have found a loving family, as he had been previously abandoned by his birth parents. Savarese has been an advocate on behalf of non-speaking autistic people as he successfully made his way through high school and college. Rubin and Savarese's life stories have several overlaps in which both of these individuals lived some of their lives not having the ability to communicate, and later became able to do so through facilitated communication. Even though facilitated communication provided them with the ability to express themselves as well as some form of independence, Rubin and Savarese continue to struggle with always having to rely on others. Facilitated communication allows for them to express their thoughts and feelings, but in order to do so, they often need assistance from a peer or helper.

Rubin's film provided a first-hand perspective into the mind of an autistic individual. Oftentimes, society does not understand what it is like to be autistic, and this film provided some insight on Rubin's life with autism. This is not to say that people without autism now fully understand what it is like to have autism, but they may now be more aware of the struggles that people with autism deal with in their everyday lives. It is important that films like this continue to be made so that society can gain this further awareness of life with autism and strive to provide more effective and successful services to those with this disability.
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8/10
Depiction of a disability
Horst_In_Translation25 April 2016
Warning: Spoilers
This 40-minute documentary movie from 12 years ago is the story of Sue Rubin, an autist. Fittingly, she is also credited as the writer. Her thoughts are presented by the voice of Julianna Margulies ("The Good Wife"). In this little movie, we basically find out how Sue deals with everyday life in general, sometimes on her own, sometimes with the help of an aide. Nearf the end, there is a bit of drama, when her regular assistant has to leave and she seems in need of a new one. Autism is a bit of a taboo and there are not too many documentaries and films about this subject. Alone from that perspective, it is already fine that this was made. And at least in terms of the protagonist we can be sure that it is real and authentic I guess. Yes there probably were a scenes written or it was also decided beforehand what certain people needed to say and things may have looked slightly different without cameras around, but it does not take away from this being a good documentary. Gerardine Wurzburg, an Oscar winner in the 1990s for "Educating Peter" got her second Academy award nomination for this one, but lost to a civil rights documentary this time. I recommend "Autism Is a World". Thumbs up.
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One of the Most Disappointing Documentaries I've Ever Seen.
LLAAA483724 March 2008
Being somebody who lives with a younger sister who is autistic, I struggle with mental disability every day. She has changed my outlook on life, however, and has helped me understand people who have trouble with just simply getting through the day. I can't say that I've had an easy time living with it and at times I lose my temper and just get really upset. But I am reassured by the fact that my family and I have it far better than a lot of people. I cry for her a lot simply because I can't imagine how depressing it is to be her and not really be aware of how much anguish she has caused us, but she is a excellent and brilliant sister and I can't imagine living without her. This film, to me, distorted what it was like to live with somebody who has such a disability and what their experiences are. I am utterly disappointed with the documentary in general. It didn't feel honest, genuine, and certainly didn't teach me anything I didn't already know about autism. As somebody who has Aspergers disorder, I can say that there are good things and bad things. This film didn't shed any light on any of the good things and offered a half-baked effort in even depicting the bad things. The bad things are mostly all about just negativity toward autism in general, but autism is something that is certainly not all bad if a person took the extra effort to show discipline and a lot of patience with someone who is autistic. I'm not saying that autism is good. In fact, it's really quite horrible to live with somebody who has the misfortune of having autism. However, there are moments of pure brilliance shown by people who have autism, and those moments are what makes dealing with autism worth it. This film didn't have any of that. Instead, it was all about the anguish and hell the ordeal is rather than the unique and interesting details. It's really disheartening.
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10/10
Right On !!
Debswaysonly25 November 2006
I am a professional Support Person and Home Care Provider. This movie is right on. Thank You for sharing your world with us. The more people that understand and see our work/your work the better we are able to support those who need us. I know how hard it is to find people to fill these kind of jobs. Many people, especially young adults, have had little exposure to anyone with disabilities ( this is my person observation only). But with this wonderful success story out there in movie form , it is a great way to open doors and minds. I emailed the next CNN air time to my entire support and case management team. I know they will enjoy it as much as I did !!
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10/10
A Woman Named Sue
NoDakTatum1 October 2023
Sue Rubin is a twenty six year old autistic woman who cannot speak. She needs twenty-four hour care as her condition does not allow her to even dial 9-1-1 in case of an emergency. At the age of 13, Sue was diagnosed with a mental age of two years, and an IQ of 29. However, when this documentary was filmed, Sue was a junior at Whittier College majoring in history, with career plans to advocate for autistics, and newspaper writing. What changed for Sue at age 13? "Facilitated communication" did. With the steadying of her sometimes flailing limbs, Sue is able to use a keyboard with vocal capabilities in order for her "voice" to be heard. The keyboarding took a lot of practice, but a reassessment of her condition put her IQ at 133, which allowed her normal high school years and college. From her tiny size, protruding tongue, and yelping vocal tics, everyone assumed Sue was mentally retarded. When she was a little girl, she exhibited self-abusive behaviors like biting her arms and head banging. Her parents never gave up on her, and we learn her brain was soaking up information like a sponge, even though her outward appearance did not show this.

The film focuses on Sue's reactions to losing two of her caregivers after many years. The two women are as young as Sue, and are moving on to other opportunities. They have become great friends, able to vocalize Sue's thoughts and even call her on an occasional lapse in concentration or purposeful misbehavior. Although many autistics are known for their seeming lack of emotion, there is a sadness on Sue's face as their time together gets shorter. Watching Sue onscreen, I was filled with admiration. She has a comforting device involving spoons and running water that is similar to my own autistic family member's comforting device. Sue proves that way too many people think all autistics are high-functioning, like "Rain Man" or Sigourney Weaver's brilliant and completely misunderstood performance in "Snow Cake." There is a routine to many autistics, and they can be humorous, but the low function of Sue takes you off guard. You feel just as frustrated as the others in the documentary as she answers questions one letter of each word at a time. She must write entire speeches and presentations like this (they are read by others), but Sue is prone to emotional outbursts, typing nonsense on the keyboard because of her attitude, especially her fears about her departing friends.

Sue wrote the narration to the film, getting screen credit, and it is expertly read by Julianna Margulies. Gerardine Wurzburg directs unobtrusively, not pestering Sue and others with a bunch of questions. This was part of the "CNN Presents" series, and was nominated for a short subject documentary Oscar. Sue says it best: she can never be free of autism. It might subside, but it will always be there. For more on the subject, I strongly recommend watching the badly titled but still brilliant documentary "Autism: The Musical," and reading "Born on a Blue Day" by Daniel Tammet, whether you are affected by autism or not.
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1/10
Autism is a World, but not this girl's...
little_socrates14 December 2006
This movie is entirely wrong about autism. I work with autistic youths on a regular basis; if she is autistic, she is also physically and mentally retarded, and may also have Tourette's Syndrome.

Autism is a disorder that does not change your appearance: most people diagnosed with autism look, in essence, exactly like the rest of us. Sue has severe facial distortion, and this is not usual in the standard autistic person.

Autism does not cause you to "do terrible, terrible things": the way she describes some of her behaviors make them sound more like Tourette's Syndrome (which, to those who don't know, does not just cause obscene language: it can cause a number of things)

Meanwhile, if she IS autistic, she's following for the oldest trick in the book. The electronic- vocalizer. Look at it again; notice how the "caregiver" moves the machine? The child doesn't really choose what they're hitting, they're just moving their finger forward. The caregiver just makes the child "say" whatever will make the most money.

I feel like this documentary is off on all counts of autism, and in order to define symptoms better CNN should not have used someone with multiple disorders. In the end, it leaves one misled about the symptoms of autism.

Thumbs-down.
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1/10
laughable
chalupa468 January 2007
Call me cold hearted, but this Sue was far beyond autistic, far, far ,far beyond. Sensationalized bull if you ask me.

Everyone seems to be getting diagnosed with autism, bipolar disorder or adhd nowadays. Personally I think it all stems from bad parenting/environment/relations during the crucial first 3-5 years of the childs development. Pills aren't going to help.

There are no causes of autism. They don't even know what it is. It is just a different neurostructure, celebrate neurodiversity and don't cast out people as mentally retarded for being different, for being INTROVERTED. Hell, I knew someone who was "diagnosed" autistic at a young age and treated as such all his life, you don't think this will have an impact on how that person turns out? I had 3 years of speech delay and after educating myself at uni and researching it and just living my life I can say that I am a boarderline high functioning autistic, or could at least pass as one at a psychiatrist (I was never thrown into a psychiatrist office because I did not speak until I was three and I thank my parents for not being idiots).

What? Is everyone supposed to be the same? When you treat someone like a retard for the first 16 years of their life what do you expect...
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Killing Autism is a Constant Battle*
YilmazTurk18 July 2005
"Autism Is A World" a 40 minute documentary narrated by actress Julianna Margulies. The documentary is about Sue who is autistic. She was diagnosed and treated as mentally retarded until the age of 13 when she began to communicate using a keyboard. When you meet her, she does not make eye contact. She obsessively attacks your buttons, endlessly stands at the faucet and watches water pour over her hand. She tells that makes her feel better. The documentary takes the viewer on a journey into her mind, into her world and her obsessions. Autism Is A World explores Sue's world, her writings, and the remarkable friendships she has created while in college.
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